My name is Matthew Craig, I am 23 and I was recently diagnosed with a trigeminal schwannoma as the result of an MRI for likely unrelated symptoms. I saw a neurotologist/ENT/surgeon at the University of Cincinnati Medical Center who has said that leaving the tumor in the brain of a 23 year old would be irresponsible because even if it is slow growing it will cause issues down the road. I have read your story and find it very inspiring in a time where I need inspiration. I recently graduated with a degree in Music Education from the Conservatory of Music and the University of Cincinnati- the point being I am a musician with his heart set on teaching. I have been told that surgical removal risks deafness in the effected ear and facial paralysis (I play the trumpet). Reading about you and your journey is very inspiring to me and leads me to have a great many questions for you about your journey. Since music is such an important part of my life I am hoping and praying that cyberknife would be the suggested treatment but await a meeting with the neurosurgeon as well as the neuro-oncologist/radiologist.

Thank you for your time,

Matthew Craig

My name is Matthew Craig and I was recently diagnosed with a trigeminal schwannoma as the result of an MRI for likely unrelated symptoms. I saw a neurotologist/ENT/surgeon at the University of Cincinnati Medical Center who has said that leaving the tumor in the brain of a 23 year old would be irresponsible because even if it is slow growing it will cause issues down the road. I have read your story and find it very inspiring in a time where I need inspiration. I recently graduated with a degree in Music Education from the Conservatory of Music and the University of Cincinnati- the point being I am a musician with his heart set on teaching. I have been told that surgical removal risks deafness in the effected ear and facial paralysis (I play the trumpet). Reading about you and your journey is very inspiring to me and leads me to have a great many questions for you about your journey. Since music is such an important part of my life I am hoping and praying that cyberknife would be the suggested treatment but await a meeting with the neurosurgeon as well as the neuro-oncologist/radiologist.

Thank you for your time,

Matthew Craig

My name is Matthew Craig and I was recently diagnosed with a trigeminal schwannoma as the result of an MRI for likely unrelated symptoms. I saw a neurotologist/ENT/surgeon at the University of Cincinnati Medical Center who has said that leaving the tumor in the brain of a 23 year old would be irresponsible because even if it is slow growing it will cause issues down the road. I have read your story and find it very inspiring in a time where I need inspiration. I recently graduated with a degree in Music Education from the Conservatory of Music and the University of Cincinnati- the point being I am a musician with his heart set on teaching. I have been told that surgical removal risks deafness in the effected ear and facial paralysis (I play the trumpet). Reading about you and your journey is very inspiring to me and leads me to have a great many questions for you about your journey. Since music is such an important part of my life I am hoping and praying that cyberknife would be the suggested treatment but await a meeting with the neurosurgeon as well as the neuro-oncologist/radiologist.

Thank you for your time,

Matthew Craig

Please tell me how I may help you? What kind of information are you looking for? I am sorry to hear about your condition. Let me know when you would like to have a chat and I will make some time for you. Until then good luck and stay strong.

-Travis

I am currently living with a trigeminal Neuroma (schwannoma). I currenly reside in South African and as a result have NO support. My tumor is against the fifth cranial nerve in the Nickels Cave. The tumour is 3.5cm.

I would really really appreciate to chat to Travis. I was diagnosed five years ago and was asymptomatic throughout this time. However recent tests have confirmed growth and neurosurgeons have suggested removal. I am waiting to consult with a radiosurgeon to assess whether i am a candidate.

I need someone to speak to. Having to go for surgery is such a scary scary thought and i need to know what the experience is post-operative.

Travis, please please help me, i have chatted t0 another trigeminal neuroma sufferer and your name popped up so please help buddy.

Kameel

Please let me know how your husband and you are holding up. I wrote you an email a couple weeks ago, but haven’t heard back from you. I would like to link your site on my site, and write a short post describing your experiences. Please let me know if that’s ok with you both.

Thank you. You’re both in my prayers.

Jimison