Comments for wonky-eye.com http://wonky-eye.com Health, Medical, Brain Tumor, Schwannoma, Resection, CyberKnife, & a U.S.Marine Fri, 20 Apr 2012 16:36:32 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Pictures by mrs.ladyking http://wonky-eye.com/pictures/comment-page-1/#comment-21108 mrs.ladyking Fri, 20 Apr 2012 16:36:32 +0000 http://wonky-eye.com/?page_id=10#comment-21108 Hi Karen, I'm sorry to hear that you have to go through such a trying time. Your tumor is similar to mine, however mine is located underneath my left trigeminal nerve. The trigeminal nerve has three main branches that cover your facial area. Each branch has a function, although I cannot quote all of them. It sounds to me like your tumor is more involved with the nerve the communicates with your temporalis branch, which is the muscle your doctor is most likely referring to. I have an empty void there because my temporalis balled up after surgery. I now have temporomandibular disorder (TMD) also known as TMJ. There is a chance you might not have to lose that muscle, however it you do you can also have cosmetic surgery to fill the void. I'm actually considering that in the future myself. I wish you luck with your surgery and if you have anymore questions please feel free to contact me here. Take care and understand this is only a temporary bump in the road. Be strong and you'll do just fine! -Travis Hi Karen,

I’m sorry to hear that you have to go through such a trying time. Your tumor is similar to mine, however mine is located underneath my left trigeminal nerve. The trigeminal nerve has three main branches that cover your facial area. Each branch has a function, although I cannot quote all of them. It sounds to me like your tumor is more involved with the nerve the communicates with your temporalis branch, which is the muscle your doctor is most likely referring to. I have an empty void there because my temporalis balled up after surgery. I now have temporomandibular disorder (TMD) also known as TMJ. There is a chance you might not have to lose that muscle, however it you do you can also have cosmetic surgery to fill the void. I’m actually considering that in the future myself. I wish you luck with your surgery and if you have anymore questions please feel free to contact me here. Take care and understand this is only a temporary bump in the road. Be strong and you’ll do just fine!

-Travis

]]> Comment on Pictures by karen http://wonky-eye.com/pictures/comment-page-1/#comment-21107 karen Thu, 19 Apr 2012 22:23:57 +0000 http://wonky-eye.com/?page_id=10#comment-21107 Hi Travis, I was just diagnosed with a brain tumor, it is benign. Just seen doctor today. He thinks it is schwannoma, and believes its on the nerve that does my chewing. Says I might have to start chewing on one side of my face. My tumor is on the right side. I was wondering is this the same thing that you have. He warned me about a indent on the side of my head do to my chewing musle no longer working. I just needed to know some things before hand. Surgery is scheduled for end of May. Thanks for any help you can give me. Karen Hi Travis, I was just diagnosed with a brain tumor, it is benign. Just seen doctor today. He thinks it is schwannoma, and believes its on the nerve that does my chewing. Says I might have to start chewing on one side of my face. My tumor is on the right side. I was wondering is this the same thing that you have. He warned me about a indent on the side of my head do to my chewing musle no longer working. I just needed to know some things before hand. Surgery is scheduled for end of May. Thanks for any help you can give me. Karen

]]> Comment on “Lord grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.” by Butch http://wonky-eye.com/2007/09/02/lord-grant-me-the-serenity-to-accept-the-things-i-cannot-change-the-courage-to-change-the-things-i-can-and-the-wisdom-to-know-the-difference/comment-page-1/#comment-21096 Butch Mon, 26 Mar 2012 03:04:42 +0000 http://wonky-eye.com/?p=50#comment-21096 I first was introduced to this prayer in 1982 when I saw it printed on a small foil decal in a dime store. I purchased it and stuck it to the middle of the dash of my new CJ 5 jeep as are reminder to be thankful for what we have been given. Since then I have often reflected on those words in both good times and in trials. I just scribed those same words in a birthday card to to my now 24 year old son for him to have and know. As I was writing, I realized that this prayer applies to ones past as much as it does the present and future. Obviously, the past is unchangeable and we must accept that. How we move forward from the past is what takes courage. As a God fearing man, I know that thru Jesus Christ I am forgiven. But it takes courage to forgive ones self for our past failures. Today I am determined to have courage not to let my past dictate my future. Every day is brand new and every tomorrow is a"sunny day". Gods' speed. day" to quote and I first was introduced to this prayer in 1982 when I saw it printed on a small foil decal in a dime store. I purchased it and stuck it to the middle of the dash of my new CJ 5 jeep as are reminder to be thankful for what we have been given. Since then I have often reflected on those words in both good times and in trials. I just scribed those same words in a birthday card to to my now 24 year old son for him to have and know. As I was writing, I realized that this prayer applies to ones past as much as it does the present and future. Obviously, the past is unchangeable and we must accept that. How we move forward from the past is what takes courage. As a God fearing man, I know that thru Jesus Christ I am forgiven. But it takes courage to forgive ones self for our past failures. Today I am determined to have courage not to let my past dictate my future. Every day is brand new and every tomorrow is a”sunny day”. Gods’ speed.

day” to quote and

]]> Comment on “Lord grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.” by Peter http://wonky-eye.com/2007/09/02/lord-grant-me-the-serenity-to-accept-the-things-i-cannot-change-the-courage-to-change-the-things-i-can-and-the-wisdom-to-know-the-difference/comment-page-1/#comment-21094 Peter Sat, 24 Mar 2012 22:20:05 +0000 http://wonky-eye.com/?p=50#comment-21094 About two weeks ago i visited my Aunt and i saw a frame in the parlor with this serenity prayer, i read it more than once, cause it really touched my heart. I was living with my Aunt and i did something unthinkable, i no longer live with dem. But dis prayers keeps me going, though i have my regrets at times for wrong things dat i did, but when i rememba this prayer it makes me feel better. I had to google search it b4 i got to dis site. God bless y'all. About two weeks ago i visited my Aunt and i saw a frame in the parlor with this serenity prayer, i read it more than once, cause it really touched my heart. I was living with my Aunt and i did something unthinkable, i no longer live with dem. But dis prayers keeps me going, though i have my regrets at times for wrong things dat i did, but when i rememba this prayer it makes me feel better. I had to google search it b4 i got to dis site. God bless y’all.

]]> Comment on “Lord grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.” by Stratis http://wonky-eye.com/2007/09/02/lord-grant-me-the-serenity-to-accept-the-things-i-cannot-change-the-courage-to-change-the-things-i-can-and-the-wisdom-to-know-the-difference/comment-page-1/#comment-21070 Stratis Tue, 14 Feb 2012 17:19:19 +0000 http://wonky-eye.com/?p=50#comment-21070 What a lovely sotry, I deeply agree with you. Good luck What a lovely sotry, I deeply agree with you. Good luck

]]> Comment on Methadone Withdrawal Update – He is on Day 8 today. by Tracey http://wonky-eye.com/2009/05/27/methadone-withdrawal-update-he-is-on-day-8-today/comment-page-1/#comment-21046 Tracey Tue, 17 Jan 2012 13:07:39 +0000 http://wonky-eye.com/?p=181#comment-21046 I'm on a very high dose of methadone...205mgs/day. I want to start coming down. I was told that on such a high dose I could easily come down as much as 20 mgs and not feel it. That seems unlikely. What do any of you think about a safe amount that won't make me sick...I was thinking about going down 5mgs per day??????? Pls help. I dont want this ball and chain anymore! I’m on a very high dose of methadone…205mgs/day. I want to start coming down. I was told that on such a high dose I could easily come down as much as 20 mgs and not feel it. That seems unlikely. What do any of you think about a safe amount that won’t make me sick…I was thinking about going down 5mgs per day??????? Pls help. I dont want this ball and chain anymore!

]]> Comment on Why Wonky-Eye? by Fred Bursch http://wonky-eye.com/why-wonky-eye/comment-page-1/#comment-20967 Fred Bursch Mon, 28 Nov 2011 15:22:24 +0000 http://wonky-eye.com/?page_id=9#comment-20967 I also was diagnosed with a trigeminal schwannoma 10 years ago. I have completed 2 brain surgeries (which also damaged my 5th nerve) and was partially numb throughout the right side of my face. They only removed 75% as the remaining 25% is around brain stem and main artery. But always had a feeling of a piece of paper pressing against my eye. I then had CyberKnife Treatment because the pain was still intense. CyberKnife Treatment was pretty new at the time and they told me I should of only had CyberKnife Treatment instead of surgery, but 10 years ago that was not an option as there is no cutting involved and it is a pretty successful radiation treatment. I also had radio tactic radiation. Now I am over radiated and no more radiation for the rest of my life. Now I just do the waiting and watching with MRI's every 6 months to make sure the tumor does not grow into the vital organs of the brain. They do not want to remove it yet as it is pretty stable. They indicated it is the size of 2 golfballs that look like barbells. I also was diagnosed with a trigeminal schwannoma 10 years ago. I have completed 2 brain surgeries (which also damaged my 5th nerve) and was partially numb throughout the right side of my face. They only removed 75% as the remaining 25% is around brain stem and main artery. But always had a feeling of a piece of paper pressing against my eye. I then had CyberKnife Treatment because the pain was still intense. CyberKnife Treatment was pretty new at the time and they told me I should of only had CyberKnife Treatment instead of surgery, but 10 years ago that was not an option as there is no cutting involved and it is a pretty successful radiation treatment. I also had radio tactic radiation. Now I am over radiated and no more radiation for the rest of my life. Now I just do the waiting and watching with MRI’s every 6 months to make sure the tumor does not grow into the vital organs of the brain. They do not want to remove it yet as it is pretty stable. They indicated it is the size of 2 golfballs that look like barbells.

]]> Comment on Pictures by Charlene http://wonky-eye.com/pictures/comment-page-1/#comment-20864 Charlene Thu, 03 Nov 2011 21:06:53 +0000 http://wonky-eye.com/?page_id=10#comment-20864 I have been going thru the ups and downs of trigeminal Neurologia for 10 years. Every few years I have to up my meds (tegretol). I am at the point where it doesnt seem to help. Seeing what you have done with your ife is inspiring and hope I can be as strong. Good Luck to you in the future. I have been going thru the ups and downs of trigeminal Neurologia for 10 years. Every few years I have to up my meds (tegretol). I am at the point where it doesnt seem to help. Seeing what you have done with your ife is inspiring and hope I can be as strong. Good Luck to you in the future.

]]> Comment on “Lord grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.” by Lena http://wonky-eye.com/2007/09/02/lord-grant-me-the-serenity-to-accept-the-things-i-cannot-change-the-courage-to-change-the-things-i-can-and-the-wisdom-to-know-the-difference/comment-page-1/#comment-20775 Lena Thu, 13 Oct 2011 11:30:57 +0000 http://wonky-eye.com/?p=50#comment-20775 Thank you for posting this. You have no idea how much this has helped me put things in perspective. God is so good...he spared me from cancer and now I really know that every breath is precious and we should not worry over things that block us from true happiness that God wants for us :-) Thank you for posting this. You have no idea how much this has helped me put things in perspective. God is so good…he spared me from cancer and now I really know that every breath is precious and we should not worry over things that block us from true happiness that God wants for us :-)

]]> Comment on Hiatus: No news is good news by Saqib Imran http://wonky-eye.com/2011/06/23/hiatus-no-news-is-good-news/comment-page-1/#comment-20646 Saqib Imran Mon, 19 Sep 2011 05:20:10 +0000 http://wonky-eye.com/?p=246#comment-20646 It`s a very interesting post about you and your family but I still think the Moral of this is to have vacations but don`t even think what will happened there Because everyone can come up some one New......!!! It`s a very interesting post about you and your family but I still think the Moral of this is to have vacations but don`t even think what will happened there Because everyone can come up some one New……!!!

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