Comments for wonky-eye.com

Comment on Methadone Withdrawal Update – He is on Day 8 today. by Tracey

Tracey — Tue, 17 Jan 2012 13:07:39 +0000

I’m on a very high dose of methadone…205mgs/day. I want to start coming down. I was told that on such a high dose I could easily come down as much as 20 mgs and not feel it. That seems unlikely. What do any of you think about a safe amount that won’t make me sick…I was thinking about going down 5mgs per day??????? Pls help. I dont want this ball and chain anymore!

Comment on Why Wonky-Eye? by Fred Bursch

Fred Bursch — Mon, 28 Nov 2011 15:22:24 +0000

I also was diagnosed with a trigeminal schwannoma 10 years ago. I have completed 2 brain surgeries (which also damaged my 5th nerve) and was partially numb throughout the right side of my face. They only removed 75% as the remaining 25% is around brain stem and main artery. But always had a feeling of a piece of paper pressing against my eye. I then had CyberKnife Treatment because the pain was still intense. CyberKnife Treatment was pretty new at the time and they told me I should of only had CyberKnife Treatment instead of surgery, but 10 years ago that was not an option as there is no cutting involved and it is a pretty successful radiation treatment. I also had radio tactic radiation. Now I am over radiated and no more radiation for the rest of my life. Now I just do the waiting and watching with MRI’s every 6 months to make sure the tumor does not grow into the vital organs of the brain. They do not want to remove it yet as it is pretty stable. They indicated it is the size of 2 golfballs that look like barbells.

Comment on Pictures by Charlene

Charlene — Thu, 03 Nov 2011 21:06:53 +0000

I have been going thru the ups and downs of trigeminal Neurologia for 10 years. Every few years I have to up my meds (tegretol). I am at the point where it doesnt seem to help. Seeing what you have done with your ife is inspiring and hope I can be as strong. Good Luck to you in the future.

Comment on “Lord grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.” by Lena

Lena — Thu, 13 Oct 2011 11:30:57 +0000

Thank you for posting this. You have no idea how much this has helped me put things in perspective. God is so good…he spared me from cancer and now I really know that every breath is precious and we should not worry over things that block us from true happiness that God wants for us

Comment on Hiatus: No news is good news by Saqib Imran

Saqib Imran — Mon, 19 Sep 2011 05:20:10 +0000

It`s a very interesting post about you and your family but I still think the Moral of this is to have vacations but don`t even think what will happened there Because everyone can come up some one New……!!!

Comment on Hiatus: No news is good news by David Haas

David Haas — Thu, 15 Sep 2011 18:25:36 +0000

Hello,
I have a question about your blog. Please email me!
Thanks,
David

Comment on Pictures by Melissa

Melissa — Sat, 03 Sep 2011 16:02:41 +0000

My husband was just diagnosed with a trigeminal schwannoma last week. We have been referred to specialist in Portland. We still have a lot of unknowns but I really appreciate you guys sharing your story. It helps me see the light at the end of the tunnel.

Comment on Why Wonky-Eye? by liz

liz — Mon, 18 Jul 2011 21:24:08 +0000

Hey Trina,
I am happy to hear that life is going well for you. I am glad that Hawaii was such a success and now Travis is ultra scuba certified, it only shows that he is taking control of life and that is a great great thing. More vacations like this to you.
That said, since your blog is a great resource for someone going through cancer I wanted to reach out to you to see if you were interested in a new online social support network (that I am the community manager of!) called I Had Cancer. It is a new and free social support network focused on connecting people based on experiences with cancer so that they can easily communicate with one another and share information. I would love to tell you more if you are interested, so please let me know! Because I was so struck by your writing I would love to send you an early-access pass with extra invites for others you may know going through this journey.

Either way, thank you so much for your writing. Take care and best regards.
-Liz@ihadcancer.com-if anyone would like info on I Had Cancer please email me.

Comment on Hiatus: No news is good news by Liz Belilovskaya

Liz Belilovskaya — Mon, 18 Jul 2011 21:22:30 +0000

Either way, thank you so much for your writing. Take care and best regards.
-Liz@ihadcancer.com-if anyone would like info on I Had Cancer please email me.

Comment on The tumor is completely gone!!!! by Diana

Diana — Tue, 12 Jul 2011 23:12:17 +0000

Hello! My mom was recently diagnosed with the same tumor. She was approved for gamma knife radiation and is still very unsure about the procedure…she is looking for someone to talk to who has the same exact tumor…and I found the both of you! Please contact me anytime if you would be interested in possibly helping my mom by sharing your experiences…thank you! dianavu23@gmail.com