Last year was certainly busy but looking back it seemed pretty uneventful in regards to Travis’ health.  Don’t get me wrong, I am more than thankful that he is defeating his tumor but I feel somewhat removed from the caregiver role.  I am not sure that I will ever “retire” from being a caregiver but Travis is significantly more independent than he was a couple of years ago.  He is now in school full time and is working full time.  He still lives with chronic pain in addition to other permanent adverse effects stemming from his tumors and the surgeries. However, over the last 12 months or so he has really learned how to manage his conditions in a way that allow him to live a more typical lifestyle. This does not meant that he does not have bad days; he still does from time to time.  But he has more good days than bad.

This year we went on our first major vacation as a couple. Hawaii.  I was nervous about going because I was worried he might not be able to participate in the physical activities that Hawaii is known for.  He ended enjoying the ocean and snorkeling so much that within a month after we returned home he became a certified open water scuba diver another month later he became a certified advanced open water scuba diver.

This July 13^th will mark the 4 year anniversary of Travis’ second (and last) surgery to remove his brain tumor.  I doubt that when he was laying in the hospital trying to recover from surgery that he ever expected that he would be well enough to be doing everything that he is doing now.

As I reflect on the last 6 years I realize that the old saying, “no news is good news” pretty much sums up why this website had been on hiatus.  I never thought that life could or would go back to normal for us but I was obviously wrong.  I hope that this post gives you strength and encouragement that things can get better.  Please do not ever hesitate to contact me regardless of the length of time in between my posts.  I receive inquiries and comments from many people with many different stories and I am always willing to listen and do my best to help.

Trina

Much has changed in our lives over that last two years. Travis has retired from the Marine Corps. We moved out of our old apartment into the one that we are living in now. Travis had CyberKnife radiation. Victoria started middle school. We received AMAZING NEWS that Travis’ pesky Schwannoma tumor succumbed to Dr. Adler’s treatment. NO MORE TUMOR!!!! I started back at work and went back to college.

Travis accepted his dream job at Northrop Grumman. He entered through a wonderful program called Operation Impact. Since retiring from the Marine Corps. Travis has been seeing new doctors. He struggled through Methadone withdrawal and is now 100% METHADONE FREE. He has a prescription for Vicodin to use for breakthrough pain but he has not taken any since June 30th. He has come a long way from his daily doses of 3000mg of Neurontin and 10mg of Methadone.

Our offer was accepted on our first home. (We are in escrow right now.)

Travis came down with Diverticulitis and then suffered from a secondary infection as a result of the antibiotics given to him to treat the Diverticulitis.

So much has happened over the last two years.  Life sure has not been easy but things seem to be turning around.  We are learning to see the glass as half full rather than half empty.  I expect that we will continue to face hurdles but what I have learned is there is nothing that Travis and I cannot accomplish if we put our hearts into it.

Wednesday was day 1 of being Methadone free.  Travis was able to go golfing after his pain management appointment.  Although Travis was a little achy I think that there was still Methadone in his system from the days before.

Thursday was day 2, Travis stayed in bed most of the day.

Friday was day 3, Travis stayed in bed again.  His systems are cold chills, irritability, achnyness, loss of appetite, stomach upset, restless nights, insomnia just to name a few.  Travis did not feel like doing much of anything.  I pushed him to get up and take a shower.  He was not in the move to move but I thought that a long shower may make him feel better.  The shower actually gave him some relief and I think he stayed in the shower until the hot water ran out.

Saturday was day 4, Travis went sailing!  We were invited to join a good friend on her sailboat.  I mentioned it to Travis and he was eager to go.  I was not sure it was such a good idea but if he wanted to try it I was going to support him.  He took to Dramamine to prevent motion sickness as well as his morning dose of Vicodin and Neurontin.  The mix of the 3 medications knocked him out and he took a short nap while we were sailing.  Other than the nap he did pretty well on our 4 hour sailing trip but by the end of the trip he had reached his limit and was ready to go home.  We went home slept again and rested the remainder of the evening.

Sunday was day 5, was pretty much like day 2.  Travis was not feeling well and he stayed in bed most of the day.

Monday was day 6, Travis started the day off in bed and complained of the list of symptoms listed above.  I did some research and find some info online that recommended a cocktail of vitamins and supplements to take to help the detox process.  I made a list of the “ingredients” and we went off to the health food store.  We bought most of what was suggested and it put us back $40, well worth it if it was going to provider Travis some relief.    Once we got back to the store I encourage Travis to play the Wii.  I noticed that when he is up and moving around he seems to feel better than when he lays in bed.  He played Tiger Woods golf for over an hour and seemed to enjoy himself.  That night he started his first round of the supplements.  One that may have worked was the Melatonin.  Travis has complained that he has been unable to sleep.  I gave him the Melatonin and within 30 minutes he was sleeping.  Either his body had enough and he was going to sleep either way or the Melatonin worked.  Regardless, he got better nights sleep.

Tuesday was day 7, this was a great day.  (Travis woke up with the same list of symptoms.) Travis’ cell phone rang at 6:40am.  He did not answer the call; he let it go to voice mail.  I was in the shower and he came to tell me that the early morning call was a long awaited job offer.  Travis had been waiting on this offer for almost 2 months.  This was a nice way to start off the day.  I went to work and later on he called me and mentioned that he had an appointment with a college counselor.  I wanted him to go but I would not have been disappointed with him had he skipped it.  I would have been so easy to use his withdrawal as an excuse to miss the appointment but instead he gathered his strength, drove to the college, and made his appointment with the counselor.  I was so proud of him.  After the appointment he picked up our daughter from school.  Then he rested in bed the remainder of the evening.  He took the Melatonin (along with the rest of the supplements) and fell asleep shortly after.

So far what I have noticed is that although this is a painful process for him, getting out of bed and moving around helps him feels better.  Also making him laugh distracts him from his pain and discomfort.  Laughter is the best medicine!

I will try my best to post short updates via Twitter.  Feel free to follow me if you have an account. 

In my opinion, this is proof that CyberKnife radiation works.  It is the best treatment for a schwannoma brain tumor.  If you have a tumor or know somebody who does then ask the  doctor is CyberKnife would work for you.

I want to write more but I donated blood today and my finger is really sore from the prick.  I will try and write more soon.

Stanford Trip

We have GREAT NEWS.  We had an appointment with Travis’s neurosurgeon and he believes that the tumor resection and radiation was a success.  Dr. Adler does not think that the tumor will grow back.  We are ecstatic!!! 

My Classes

I am almost down with this semester.  Many times I have felt like giving up.  We just have so much going on.  But I remind myself that I am a role model to Victoria and that the more education I have, the more I can help others.  Those two thoughts keep me on track.

The Kiosk

Many of you know Travis has started www.tntride.com back in October 2005, just a couple of months before he was diagnosed.  Though he has had some progress he has not been able to fully dedicate himself to it because of his illness and treatment.  If you notice some of the pictures just days after his surgery he still continued working.  Anyway, we proudly opened a kiosk on MCAS Miramar in front of the Exchange.  Travis and I are both really proud of this accomplishment.  So far we have spent two weekends there and both ended being a success.  We are going to be there again next weekend too.  I hope that this kiosk will end up supplementing Travis’s income once he retires.

My Employment Situation

Speaking of income I have had a difficult time finding a job.  I applied to a bunch of jobs here.  I turned down one offer because I was almost guaranteed a position with another company.  After months of negotiations and jumping through hoops I was told that the company has a hiring freeze and they will contact me as soon as that changes but they are not sure how long that will be.  It worries me because without that job we will most likely end up moving back to Los Angeles unless something else comes through for Travis or I.  I hate to think about that so I am just taking things day by day.

Something Else Concerning Me

A Schwannoma brain tumor is a VERY VERY RARE type of a tumor.  Recently I was contacted by another wife whose husband also has a Schwannoma and is stationed at MCAS Miramar.  What are the chances of that occurring?  Travis also worked with another Marine who was diagnosed with a brain tumor.  It makes me wonder if there is a link between brain tumors and the military.  I certainly hope not but I am going to do some research and see what I can find.

We will be traveling up to Stanford for a follow up appointment with Travis’s neurosurgeon, Dr. Adler. We have to stay over night for that appointment and luckily my sister offered to take time off from work to watch Tori. With so much else going on I have not really had time to think about what we might hear from Dr. Adler. Travis is getting an MRI when he is up there and I hope that we get good news. To be able to function I have been thinking positive. In my mind Travis is on his way to getting better and we are on our way to living a more “normal” life. I hope that we are told that the tumor has not grown.

I have been doing my best to keep up with school. I was really looking forward to starting classes again but I did not realize how hard it was going to be to fit them in our busy schedule. More than once I have wanted to quit the classes because I feel so overwhelmed. What keeps me on track is I remind myself of special people like Travis’ Flight Surgeon and a few other individuals who have really made a difference in this difficult time. I want to be able to give back someday and I want to be able to help out other people and other families the way that we have. When I remind myself of these goals and of my mentors I get the strength to continue with my schooling. I am nearing the end of my first semester back and I can’t wait to finish so that I can feel that accomplishment. This last weekend I took three quizzes, one exam, watched a foreign film, wrote a two page essay, and read my textbooks. I could not have found the time for this if I did not have the support of my family.

Today we had plans to go to base to get our orders for our trip to Stanford. After getting our orders we were going to go grocery shopping and then to the bank. Well as usual, things could not go as planned. While we were at Travis’s unit getting his orders Travis bent down to fix his shoe and he had a back spasm. He described it to be just as painful as the time that he was hospitalized initially for his back problem. We finished up our business with his unit and then Travis drove to Base Medical. Why was Travis driving and not me? Well he just started driving again, he was driving his car and it is stick shift and I can’t drive stick shift. So we were stuck. Anyway, we made it to Base Medical and he was seen by the doctors that we on duty today. They assessed the situation and gave him some pain medication and a shot so that he could be comfortable. We walked down to the pharmacy and waited to be called. We ended up sitting next to a nice man that struck up a conversation with Travis. He noticed that Travis was in pain and started asking questions. One thing lead to another both Travis and the man were sharing there horror stories from Balboa Hospital. This man suggested that we write to our Congressman and Senator about what happened and gave Travis a great pep talk about standing up for himself. The pep talk really touched Travis’s heart to know that a stranger took the time to listen to what Travis has been going through and that this man actually cared.

Also I should mention that today Travis got a call from a stranger. When I use the word stranger I intend no negative connotation. I use the word simply to imply a person that has no relationship to us, someone that has no obligation to us. And it overwhelming to us when a stranger opens up their heart to us. Back to what I was saying, a woman called him today from the Injured Marine Semper Fi Fund. She got our information from a case worker and called Travis to tell him how her organization could help him. Something this woman said really touched Travis’s heart and after he hung up the phone with her he was speechless. I hate that Travis has had these health conditions but considering the situation, nothing could compare to the way that we feel when we are approached by caring people. It really means a lot to us. Nothing can take away his tumor but caring people can certainly make living with it a lot better. The feeling these people give us also is a motivation and a reminder of how important it is to give back.

Click here to read stories of injured services member and how the Injured Marine Semper Fi Fund assisted the service members and their families.

It was great to see him snowboarding again.  I am so glad that this was not permanently taken from him. 
 

I am thankful that he is getting better.  I was nervous that his eye would not correct itself again.  He beat the odds the first time after his initial surgery.  I thought that the chances of his eye beating the odds twice were slim to none.  Well I guess he is a lucky guy because his eye seems to be working hard to get back to normal.

Travis has also driven a couple more times.  He can’t drive by himself because he can’t see everything to the left of him.  As long as he has a “co-pilot” can drive pretty well.

Travis also mentioned the other day that the cold sensations that he used to get after he took his first sip of a drink are happening far less.  I think this means it is another area of healing.

All in all I could not ask for anything more.  Over the last two years our family has overcome more than I ever could have imagined.  So many steps of this journey have been a challenge.  So many times I could hardly get through the day.  Looking towards the next month or holiday seemed unreal.  It was hard enough just getting through the day.  A year and a half ago I could never have imagined that we could have got this far. 

We just celebrated Thanksgiving and there was so much that we were thankful for.  More holidays are approaching and Travis’s improving health is more than I could ask for.