Why is this website called wonky-eye and what is it all about?
After my husband was diagnosed with having a Schwannoma we looked up “schwannoma”, “brain tumor” and other related terms online. What we found were a bunch of medical journals and other similar websites that provided us with confusing and overwhelming information. Though this information was helpful we still felt very lost. Being diagnosed with something like this not only changes the life of the individual diagnosed; it changes the lives of everyone around that person. If I could have found a website published by someone who was going through the same thing as me it would have been really helpful.
This website is created to help others who are going through what we are going through. It is to share the personal journey that our family is taking. I am providing some medical information (not medical advice) but my main goal is to share the emotions and experiences that we have. It is the personal look inside the life of a family who is battling a Schwannoma.
When it came time come up with a domain name for this project I brainstormed a bit and then it hit me…www.wonky-eye.com.
After my husband’s first surgery his left eye changed. Because of nerve damage immediately after his first surgery his left eye was pointed in towards his nose. Over time the nerve healed and his left eye began to move outward. It never got back to the way it was but it did improve. However, there were times when his eye would regress and point inward. There were also times when his left eyebrow would droop.
Because we try to stay positive about this condition Travis gave his eye a nickname. When Travis’s left eye would turn in or droop he would call it his “wonky eye”.
Please check out the Pictures page. You will find pictures of Travis before surgery as well as day by day pictures of him after his second surgery so that you can see the healing process. The picture page is a work in progress so please be patient.
5 responses so far ↓
1 War Man // Feb 20, 2008 at 23:33
T, I never would have guessed, that you were ever sick. How I admire you , for steppin’ up to the entrepreneurial plate! I have learned something from this site tonight; courage, knowledge, forbearance, love. With respect, War
Oh, wonky eye, is a nice touch.
2 Lisa // Sep 12, 2008 at 15:39
Hello,
I wanted to see if you could help us distribute some info about our upcoming Heroes of Hope Race for Research on November 23rd to benefit brain tumor research. The race, a 5K, 10K and Kids Fun Run, will be held at Dockweiler State Beach, in Los Angeles, CA. We would greatly appreciate it if you could spread the word to family, friends, and colleagues. Teams can be set up in honor of loved ones, or sign up to become a virtual runner.
We will also need many race day volunteers and as always are still in need of prize donors and sponsors. Please help us find a CURE for brain tumors.
More information regarding this event can be found at http://www.tbkf.org and sign up is at http://www.tbkf.org/run.htm.
The day will be a fun filled day of Hope, with lots of prizes, food and beverages and an expo. Please respond and let us know if we can provide you with flyers as well.
With Gratitude, and Together in Hope
Lisa Millar
http://www.tbkf.org
3 Joanie // Oct 7, 2009 at 10:37
Hello,
It was very nice to find your website it makes you feel that you are not alone.Hope all is well.My son is 16 and was just diagnosed with a Trigeminal Schwanoma.His tumor is 2.5 cm.It was found accidentally after he suffered a concusion from playing soccer.He had double vision for a few weeks after but now,5months after the concusion he just has headaches and occasional “weird vision” problems.After seeing 4 doctors and 2 opthamologist because he really dosnt have any symptoms they are suggesting to wait for any treatment until we have to.I was wondering how big Travis’s tumor was?My son says he is fine but when you have just been told you have a brain tumor how good can you be.Any advice would be great.We live in Michigan.We are seeing Dr.s at Univeristy of Michigan.Thanks for anything that you think might help.I’m a very worried mom.
4 Kara // Nov 20, 2009 at 11:36
My husband was diagnosed a year ago with a vestibular schwannoma, but when the surgeons were getting ready to remove the tumor, it turned out to be 7th cranial nerve schwannoma and they could not remove it or his face would have been full paralyzed. Back to when they thought it was a vestibular schwannoma, there were more treatment options if it was 2 cm and smaller. My husband’s measured 3 cm and that was the large end of what the surgeons considered a medium size tumor.
5 Candie // Nov 24, 2009 at 15:00
My husband, also a Marine, has been diagnosed with brain cancer (12/09/08). I am searching for help (and willing to help) Marines that served in the Gulf. We are working on a VA claim, and need to substantiate his illness with his service. Please contact me.
Thank you
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