Comments on: Speechless!!!!!!!!!!!!!!!!!! http://wonky-eye.com/2008/04/07/144/ Health, Medical, Brain Tumor, Schwannoma, Resection, CyberKnife, & a U.S.Marine Tue, 17 Jan 2012 13:07:39 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Richard Allgower http://wonky-eye.com/2008/04/07/144/comment-page-1/#comment-15795 Richard Allgower Wed, 08 Jul 2009 20:40:59 +0000 http://wonky-eye.com/?p=144#comment-15795 I am about to go through a similar situation. About 2 months ago my face went numb, along with nausea, dizziness, difficulty speaking and swallowing. Just last week (june 23, 09) i was diagnosed with having an epyndenoma on my brain stem the size of a grape. I am having brain srugery to have it removed and get further info if I will need radiation treatment afterwards. I am hoping wither one of you will contact me. I just want my wife to have someone to turn to for info in the worst case scenario. I am about to go through a similar situation. About 2 months ago my face went numb, along with nausea, dizziness, difficulty speaking and swallowing. Just last week (june 23, 09) i was diagnosed with having an epyndenoma on my brain stem the size of a grape. I am having brain srugery to have it removed and get further info if I will need radiation treatment afterwards. I am hoping wither one of you will contact me. I just want my wife to have someone to turn to for info in the worst case scenario.

]]> By: Ivy Wood http://wonky-eye.com/2008/04/07/144/comment-page-1/#comment-845 Ivy Wood Tue, 13 May 2008 06:36:24 +0000 http://wonky-eye.com/?p=144#comment-845 I want you to know we are right there with you. My husband, MSgt Wood was ill for 2 years pretty much continuously. Finally, when he returned from Iraq in Sep of 07, he was so sick that we couldn't even celebrate his homecoming Finally, on 6 Dec, after two years of being told he had "sinus problems" "Migraines" and was "malingering," and FOUR CAT scans which were ALL mis-read, he was diagnosed with a vestibular schwannoma. Surgery was successful, but he has lifetime deficits from the tumor, because it grew to the size of a golf ball before it was detected. Sondria has literally kept our family in a home, as I continue to be out of work to care for my husband and our girls. Please e-mail me, I'm so glad we are not alone on this journey. He has been told he cannot medically retire because he's at the 20-yr mark anyway. We are at a loss. We're worried the VA disability will not be sufficient, and his fatigue and dizziness are still so bad that he may not be able to work full-time after his retirement in October of this year. I will think of you daily, and I've bookmarked this blog. I'm also signing the petition. My husband suffered for years because of the military's negligence, and even underwent a useless sinus surgery to try to correct his "migraines" and "facial pain" when the whole time, a simple MRI would have detected a brain tumor so large that it had compressed his fourth ventricle to the point that it was suppressing fluid to his brain and affecting his vision.. Love and light, Ivy Wood I want you to know we are right there with you. My husband, MSgt Wood was ill for 2 years pretty much continuously. Finally, when he returned from Iraq in Sep of 07, he was so sick that we couldn’t even celebrate his homecoming Finally, on 6 Dec, after two years of being told he had “sinus problems” “Migraines” and was “malingering,” and FOUR CAT scans which were ALL mis-read, he was diagnosed with a vestibular schwannoma. Surgery was successful, but he has lifetime deficits from the tumor, because it grew to the size of a golf ball before it was detected.
Sondria has literally kept our family in a home, as I continue to be out of work to care for my husband and our girls. Please e-mail me, I’m so glad we are not alone on this journey. He has been told he cannot medically retire because he’s at the 20-yr mark anyway. We are at a loss. We’re worried the VA disability will not be sufficient, and his fatigue and dizziness are still so bad that he may not be able to work full-time after his retirement in October of this year.
I will think of you daily, and I’ve bookmarked this blog. I’m also signing the petition. My husband suffered for years because of the military’s negligence, and even underwent a useless sinus surgery to try to correct his “migraines” and “facial pain” when the whole time, a simple MRI would have detected a brain tumor so large that it had compressed his fourth ventricle to the point that it was suppressing fluid to his brain and affecting his vision..

Love and light, Ivy Wood

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